Children - Suspected Cancer

Definition/Description

Cancer in children and young people is rare. In the UK, only 1 in every 500 children under 15 develops a cancer. So about 1,600 children (up to the age of 15) in the UK are diagnosed with cancer each year.  

This form is only to be used for referrals with a high risk of cancer, and is appropriate for all childhood cancer sites.

Red Flag Symptoms

No Red Flag Symptoms Listed

Guidelines on Management

No Guidelines on Management Listed

Referral Criteria/Information

Important Referral Checks

Our commissioned acute providers have asked that you bear in mind when sending in an urgent suspected childhood cancer referral to check:

  1. Has it been explained to the parent/guardian that this referral is for investigations that could lead to a cancer diagnosis?
  2. Have you checked that the patient/parent/guardian will be available in the next 48 hours to attend an appointment?
  3. Have you provided the parent/guardian with further information about the appointment? 
  4. Check patient’s and patient's parent/guardian contact details are up to date

Referral Criteria

A referral for childhood cancers includes all areas of paediatric cancer.  Further information on each of these is available here.  The types of cancer and further links are:-

Bone Tumour/Sarcoma (osteosarcoma, Ewing sarcoma)

Consider a very urgent direct access X-ray (to be performed within 48 hours) to assess for bone sarcoma in children and young people with unexplained bone swelling or pain.

Consider a very urgent referral (for an appointment within 48 hours) for specialist assessment for children and young people if an X-ray suggests the possibility of bone sarcoma.  Consider Pathway information on Sarcoma

Brain Tumour

Consider a very urgent referral (for an appointment within 48 hours) for suspected brain or central nervous system cancer in children and young people with newly abnormal cerebellar or other central neurological function. 

Hepatoblastoma

Consider very urgent referral (for an appointment within 48 hours) for specialist assessment for hepatoblastoma in children and young people with a palpable abdominal mass or unexplained enlarged abdominal organ.   Further signs and symptoms of hepatoblastoma

Leukaemia

Refer children and young people for immediate specialist assessment for leukaemia if they have unexplained petechiae or hepatosplenomegaly.

Offer a very urgent full blood count (within 48 hours) to assess for leukaemia in children and young people as indicated in the Suspected Haematological Cancers pathway

Lymphoma

Consider a very urgent referral (for an appointment within 48 hours) for specialist assessment for both Hodgkin’s lymphoma or non-Hodgkin’s lymphoma in children and young people presenting with unexplained lymphadenopathy or splenomegaly. When considering referral, take into account any associated symptoms, particularly fever, night sweats, shortness of breath, pruritus or weight loss.

Neuroblastoma

Consider very urgent referral (for an appointment within 48 hours) for specialist assessment for neuroblastoma in children with a palpable abdominal mass or unexplained enlarged abdominal organ.  

Retinoblastoma

Consider urgent referral (for an appointment within 2 weeks) for ophthalmological assessment for retinoblastoma in children with an absent red reflex.

Soft Tissue Sarcoma 

Urgent u/s to be performed within 48 hours, to assess for soft tissue sarcoma with an unexplained lump that is increasing in size.  

Consider a very urgent referral (for an appointment within 48 hours) for children and young people if they have ultrasound scan findings that are suggestive of soft tissue sarcoma or if ultrasound findings are uncertain and clinical concern persist.   Consider Pathway information on Sarcoma

Wilms’ tumour

Consider very urgent referral (for an appointment within 48 hours) for specialist assessment for Wilms’ tumour in children with any of the following:

  • a palpable abdominal mass
  • an unexplained enlarged abdominal organ
  • unexplained visible haematuria

 

Additional Resources & Reference

Referrals

Telephone discussion are actively encouraged, either with Dr Kotwal on Telephone Number (01482) 674039 or with the Consultant Paediatrician On Call via the main switchboard on Telephone Number (01482)328541.

The Central Referral Point telephone number is: 01482 604308

Electronic referrals can be made via the NHS e-Referral system. Services for a 2 week wait, suspected cancer are found by searching on speciality for 2ww and then selecting the clinic type i.e. 2ww Children and Young People.

Information to Include

  • Medical history / drugs / allergies
  • Has patient been informed of the reason for the referral?

Associated Policies

There are no associated policies.

Places covered by

  • East Riding
  • Hull
  • North East Lincolnshire
  • North Lincolnshire

Hospital Trusts

  • Hull University Teaching Hospitals
Author:
Date created: 07/07/2025, 14:14
Last modified: 10/07/2025, 13:53
Date of review: 07/07/2025